Health on the Go: Medical Apps, Privacy, and Liability
April 4, 2014
9:30 a.m. to 4:30 p.m.
Attorney General Lisa Madigan
She became the first woman elected to serve as the Illinois Attorney General, and one of only a handful of female Attorneys General in the country in November 2002. In 2010, she was elected to her third term as Attorney General and now is the senior-most female Attorney General in the country. Madigan has testified before Congress on a range of subjects, including protections for consumers' privacy.
Madigan's key initiatives include: consumer protection, protecting communities from sex offenders and online predators, fighting for open and accessible government, and keeping seniors safe. Under Madigan's leadership, the Consumer Protection Division has established a national reputation for aggressively safeguarding consumers from financial fraud and unsafe products. Madigan has dedicated the energy and resources of her office to protecting children and women from the dangers of sexual predators and established herself as a leader in the public's fight for open and accessible government. Additionally, Madigan has been widely praised for implementing a series of proactive law enforcement strategies to protect seniors in nursing homes and to combat the spread of methamphetamine and synthetic drugs throughout the state. Before her election as Attorney General, Madigan served in the Illinois Senate and worked as a litigator for a Chicago law firm. Prior to becoming an attorney, she was a teacher and community advocate, developing after-school programs to help keep kids away from drugs and gangs. Madigan earned her bachelor's degree from Georgetown University and her JD from Loyola University Chicago School of Law.
Professor Annas is the William Fairfield Warren Distinguished Professor and Chair of the Department of Health Law, Bioethics & Human Rights of Boston University School of Public Health, and Professor in the Boston University School of Medicine and School of Law. He is the cofounder of Global Lawyers and Physicians, a transnational professional association of lawyers and physicians working together to promote human rights and health. Professor Annas is the author or editor of 19 books on health law and bioethics, including Worst Case Bioethics: Death, Disaster and Public Health (2010), American Bioethics: Crossing Human Rights and Health Law Boundaries (2005), and The Rights of Patients (3rd ed. 2004), and a play, entitled "Shelley's Brain," that has been presented to bioethics audiences across the U.S. and in Australia. He has written widely in the area of medical privacy in the face of new technologies and drafted a model Genetics Privacy Act.
He has been called "the father of patient rights." Professor Annas wrote a regular feature on law and bioethics for the Hastings Center Report from 1976 to 199l, and a regular feature on "Public Health and the Law" in the American Journal of Public Health from 1982 to 1992 and since 1991 has written a regular feature on "Legal Issues in Medicine" for the New England Journal of Medicine, now under the title "Health Law, Ethics, and Human Rights." He is a fellow of the American Association for the Advancement of Science, a member of the Institute of Medicine, Vice Chair of the American Bar Association's Committee on Health Rights and Bioethics (Individual Rights and Responsibilities Section) and a member of the Committee on Human Rights of the National Academy of Sciences. He has also held a variety of government regulatory posts, including Vice Chair of the Massachusetts Board of Registration in Medicine, Chair of the Massachusetts Health Facilities Appeals Board, and Chair of the Massachusetts Organ Transplant Task Force. He has degrees from Harvard College (AB economics, '67), Harvard Law School (JD '70) and Harvard School of Public Health (MPH '72), where he was a Joseph P. Kennedy Fellow in Medical Ethics.
Professor Andrews is a Distinguished Professor of Law at IIT Chicago-Kent College of Law and director of IIT's Institute for Science, Law and Technology. She has published widely on internet privacy, including her latest book, I Know Who You Are and I Saw What You Did: Social Networks and the Death of Privacy (2013).
She has been an adviser on medical technologies to Congress, the World Health Organization, the National Institutes of Health, the Centers for Disease Control and Prevention, the federal Department of Health and Human Services, the Institute of Medicine of the National Academy of Sciences, and several foreign nations, including the emirate of Dubai, the French National Assembly, and G8 Science Ministers. Professor Andrews' path-breaking litigation about technologies caused the National Law Journal to list her as one of the "100 Most Influential Lawyers in America." In 2002, she won the National Health Law Teachers Award. In 2005, she was made an Honorary Fellow of the American College of Legal Medicine for her "distinguished achievement in the field of legal medicine." She is the author of 11 nonfiction books. Professor Andrews is also the author of three mysteries involving a fictional geneticist: Sequence (2006), The Silent Assassin (2007) and Immunity (2008). The ABA Journal describes Professor Andrews as "a lawyer with a literary bent who has the scientific chops to rival any CSI investigator." She received her BA summa cum laude from Yale College and her JD from Yale Law School.
Ms. Blenner is the Director of the Center for Diabetes Research and Policy at IIT Chicago-Kent College of Law. She has spearheaded an analysis of 275 health apps related to diabetes. She has also been involved in litigation affecting individuals with diabetes in the school, day care, and prison settings and works to ensure appropriate diabetes-related policies are implemented. She also helps facilitate interdisciplinary projects at IIT. Ms. Blenner received her JD from IIT Chicago-Kent College of Law and her MPH from the University of Illinois at Chicago. She received her BA magna cum laude from Emory University.
Dr. Gerber, MD, MPH, is a general internist and Associate Professor of Medicine at the University of Illinois at Chicago Institute for Health Research and Policy. Dr. Gerber’s research interests include chronic disease self-management and health behavior promotion through technology and health services delivery redesign. His research focuses on low-income minority populations and those with limited access to health services. Dr. Gerber has received funding for patient-level research through the NIH and AHRQ. He is currently the principal investigator of an NIH-funded study to evaluate community health workers and pharmacists in providing diabetes team management. Intervention research includes the use of iPads for multimedia education and text messaging to engage with clients. Dr. Gerber developed mytapp, a simple, 2-way text messaging application designed for chronic disease management support and the promotion of healthy behaviors. mytapp is currently utilized in research on diabetes adherence as well as weight management.
Mr. Jones currently serves as an Assistant Attorney General and Director of the Policy Bureau for the Illinois Attorney General’s Office. Previously, Mr. Jones served as Chief Investigative Counsel and Deputy General Counsel to the U.S. Senate Committee on Commerce and as Counsel to the Committees on Oversight & Government Reform and Energy & Commerce in the U.S. House of Representatives. In his positions at both the federal and state level, Mr. Jones’ work has focused on examining and responding to the impact technological developments have on consumers and the country. He has initiated and led investigations into abusive billing practices on the internet, third-party billing through landline and wireless telephones, the collection of consumer medical information through websites and apps, and the practices of data brokers. This work has led to several important consumer reforms, including the Restore Online Shoppers’ Confidence Act, signed into law by President Obama in 2010, and the decision by major telephone carriers to limit third-party billing through landline telephones. While working for the Senate Commerce Committee, Mr. Jones was also tasked with leading Chairman Rockefeller’s efforts to pass comprehensive cybersecurity legislation. Erik began his legal career as an associate in the Washington, D.C. office of DLA Piper. He is a graduate of the University of Michigan Law School and Southern Illinois University-Edwardsville.
Scott A. Kamber
Mr. Kamber, a founding member of KamberLaw, has been involved in precedent-setting cases for areas such as internet privacy rights, data breach liabilities, and digital rights management. His interest in internet privacy rights began in the 1990s when he resolved what is believed to be the first internet privacy case to recover a benefit for impacted class members. Mr. Kamber received his bachelor's from John Hopkins University in 1986 and graduated cum laude from the University of California Hastings College of the Law in 1991.
M. Ellen Mitchell, PhD
Dr. Mitchell is the Interim Dean of the Lewis College of Human Sciences and Professor of Psychology at the Illinois Institute of Technology. Previously she was the Dean of the College of Psychology in 1996. Author of an edited volume, numerous articles, and more than 100 professional presentations, her research, presentations, and publications have focused on interpersonal relationships as a moderator of health and mental health outcomes, person variables associated with internet use and human issues in emerging technologies including nanotechnology. Professor Mitchell was the recipient of the Lewis College award for excellence in teaching and the Julia Beveridge award, the highest honor awarded to an IIT woman. She was the longest seated member of the Executive Board of the Council of Graduate Departments of Psychology, the national organization of departments of graduate Psychology training. In addition to substantial fundraising that included the establishment of the first endowed chair for psychology, Professor Mitchell developed a distinguished Board of Overseers for the College, the IIT Center for Research and Service, the IIT Leadership Academy, the Kedge program, was key on the joint project with Galvin Library known as “Voices of the Holocaust” and the partnership with The Illinois Holocaust Museum and Education Center.
Ms. Tiano is Investigative Counsel to the Senate Committee on Commerce, Science, and Transportation. Ms. Tiano joined the Senate Commerce Committee, chaired by Senator John D. Rockefeller IV, in 2010. Under Chairman Rockefeller, the office’s mandate is to uncover waste, fraud, and abuse in the public sector and harmful practices for consumers in the private sector. Since joining the Committee, Ms. Tiano has worked on several investigations, including the Committee’s year-long investigation into the data broker industry. Ms. Tiano is a graduate of the University of Pittsburgh and Duquesne University School of Law.
Dr. Zhang is an Assistant Professor in the School of Information at the University of Texas at Austin. She holds a PhD in Information Science from the University of North Carolina at Chapel Hill. Her research focuses on examining consumers’ health information search behavior on the Web and through emerging social media, and designing personalized search systems that cater to individual users’ information needs, preference for information, and personality. By enabling users to find the most appropriate type and amount of information, as well as the information that suits one’s literacy levels, her research is intended to empower consumers and contribute to optimal behavioral change, self-management, and health-related decision making. Professor Zhang’s work has been published in various journals including the Journal of Medical Internet Research, Journal of the American Society for Information Science and Technology, and Information Processing and Management.
Mr. Zuck, President of the Association for Competitive Technology, is a recognized leader in the technology industry and an expert on the effects of governmental regulation on innovation and small businesses. Since becoming President of ACT, Mr. Zuck has steered its growth into one of the most influential organizations at the intersection of technology and politics. ACT is a leading representative and voice of the app development industry and the mobile medical marketplace, sponsoring a nationwide tour in January 2014 to educate app companies and investors about the regulatory landscape. Mr. Zuck enjoys filmmaking as a hobby; his film Palindrome was screened at the 2011 Cannes Film Festival.
William C. Kling
Professor Kling, JD, is a Professor at the University of Illinois at Chicago School of Public Health and Adjunct Professor at IIT Chicago-Kent College of Law. Professor Kling is a public policy expert with over 20 years’ experience in the public and non-profit sectors. Throughout his career, Professor Kling has provided advice and counsel to educational institutions, local governments and non-profit organizations. For the past several years, Professor Kling has been engaged in public policy work in the areas of childhood obesity prevention, food systems, community preparedness and youth workforce development, including work on the 2007 Farm Bill. His action-oriented public policy work has been funded by the W.K. Kellogg Foundation, the Robert Wood Johnson Foundation, the Otho S.A. Sprague Memorial Institute, and the Northeast Midwest Institute, among others. He has provided policy consultancy to the Consortium to Lower Obesity in Chicago Children, Illinois ResourceNet, the Institute for Community Resource Development, and the Southern Sustainable Agriculture Working Group.
Professor Warner of Law at IIT Chicago-Kent College of Law and the Faculty Director of the Center for Law and Computers at IIT. Professor Warner joined the IIT Chicago-Kent faculty in 1990. Prior to that, he was an assistant professor of philosophy at the University of Southern California and the University of Pennsylvania. Professor Warner was named a Norman and Edna Freehling Scholar in 2002. He is co-author of Robert Sloan and Richard Warner, Unauthorized Access: The Crisis in Online Privacy and Security, (2013).
Professor Warner's research concerns the regulation of business competition on the Internet and Internet security as well as the nature of human rights and their grounding in personal freedom. He has lectured on Internet security at the second United Nations Economic Commission for Europe workshop, "E-Regulations: E-Security and Knowledge Economy," in Geneva, Switzerland, and, at the invitation of the FBI, on global cybercrime before the Chicago Crime Commission. He was the principal investigator for "Using Education to Combat White Collar Crime," a U.S. State Department grant devoted to combating money laundering in Ukraine from 2000 to 2006. He is currently a member of the U.S. Secret Service's Electronic and Financial Crimes Taskforce.
Professor Warner earned his JD from the University of Southern California, where he served on the Southern California Law Review and was elected to the Order of the Coif. He received his PhD in philosophy from the University of California, Berkeley, and he received his BA (with distinction and Phi Beta Kappa) in English from Stanford University.